He started to slip.
The little boy had taken his first breath a little more than a week earlier, and now he was near to take his last.
Doctors had said there was nothing they could do.
The girl who had given her life wanted to hear the final heart of her child. Keeping her stethoscope in her chest, he listened to.
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He slowed the baby's heart. His life disappeared. Slower and slowly, it sounded until it was clear that the end was close.
Tracy McCarthy was about to experience that no parent should ever have.
Baby Jack had other plans.
He was not ready to farewell. Not yet.
She shaken the heart, almost unacceptable, suddenly became stronger and stronger.
"It was obviously fighting to be here and we wanted to fight for it," McCarthy said about her baby son.
Tracy McCarthy and her husband, Tommy, reconcile themselves.
The couple decided that minute to give Jack an opportunity. No matter what the cost is. No matter the difficult things. No matter the result.
Their journey would take the family from eviction and despair after being rejected by a number of medical facilities, to hope and joy after finding a Illinois doctor who was ready to help.
Then they called the strength to accept the weakness of their baby.
Jack Life McCarthy's life was 81 days – much more than doctors guessed. Lots of time to smile. Good time to touch the lives and those that surround it in a permanent way. And enough time to feel the seamless love of his parents.
Not soon after they were married in 2017, McCarthys learned that they were expecting.
Like most part-time parents, they were ecstatic, and pregnancy usually went on.
In 39 weeks, baby Jack was born on November 8, 2018, weighing in 8 pounds and 3 ons; They all seem a healthy boy with 10 fingers and 10 fingers.
Jack seems to be like his grandfather and a mother and his name after him. His middle name pays homage to his father.
Everything seemed normal until about an hour before a mother and a baby were sent home. The staff with Jack came to the mother of nursing.
He would not tie on, remember Tracy McCarthy.
The inception of the Mother began. Tracy tells her husband that something was not right. They told the nurse who checked that Jack's oxygen level Jack discovered that he was too low.
Likewise, the second of happy parents taking their neonatal home was uncertainty as doctors swept over Jack, and they made the intensive care unit neonatal
Doctors told McCarthys that Jack had a heart failure. I was later transferred to the Nationwide Children's Hospital in Columbus.
"It's been a spray of a roller ride," said 28-year-old Tommy McCarthy, in mid-January. "Everything was taken away from you. Going from hospital to hospital without knowing if you were leaving with your son. If he was going to go I never had to see the room you made or to meet his dog.
"We were told twice that he was going to die," said the new father. "There's a difficult pill to swallow. This is not a parent's handbook."
While in Columbus, doctors were running a number of tests, including genetic tests.
Jack could be suffering from a number of conditions, including Loeys-Dietz's syndrome, doctors told McCarthys. Jack spent a week in hospital fighting for his life, as his parents were waiting for tests to confirm what was wrong.
Doctors left some hope. Jack needed surgery to repair aorta to expand, surgery that would not likely survive. The baby was too weak.
With unexpected choices, Tracy and Tommy McCarthy took their baby at home to die.
Jac doctors gave 72 hours to live.
"It was awful," said Tracy McCarthy, that her voice was falling and tears flowing.
Back in Massillon, Jack was introduced to the family dogs Buddy, goldendoodle, and Bear, labradoodle.
"We were damaged but we know he had got a one-way ticket to heaven," said his mother. "We told him everything would be fine. We were so happy that we had it for a while."
For the next 48 hours they are waiting.
A hospice nurse was on hand. Four times, Jack stopped baby breathing. Turn her purple skin.
Passing days Jack refused to die.
His parents refused to wait longer, and, taking their queue from Jack, they were looking for a way to beat the conflicts.
With the help of a Nationwide hospital, they reach the pediatric genetics John Harry Hopiet, Dr Harry Dietz, who discovered the disease that took Jack's life.
Dietz referred to Dr. Luca Vricella, a pediatric cardiac surgeon at the Advocacy Children's Hospital outside of Chicago. Recently, Vricella Johns Hopkins left.
"He called on Tuesday and said he had heard of our story and was being turned away from hospitals, he said," I think I can help. ch son, & # 39; " says Tracy McCarthy, 32.
Two days later, Jack was transported through a medical jet from Akron-Canton Airport to the hospital in Illinois. He spent another week and was on a surgical board.
Loeys-Dietz syndrome is a tissue disorder that is similar to Marfan's syndrome.
The condition is characterized by aortic aneurysms.
In the case of Jack, her aorta was expanded, encompassing her whole heart and compressing nearby organs. His heart was eliminated and blood failed to reach his lungs.
"He had aorta root of 20 years old," explained Vricella.
Not only the Jack aorta was expanded, he also had aortic distribution.
Vricella aorta replaced Acharu Jack with one of a 4 year old boy. Immediately immediately the baby responded to the surgery, said the doctor.
Survival rates are very high after treatment, Vricella said. But Jack's case was an unequal territory. The youngest baby from Stark County was the youngest child with Loeys-Dietz's syndrome that Vricella was treated. Jack would have to be monitored and he needed his medication on his condition.
Typically, children are diagnosed between 4 and 10 years old, or as an adult. Jack, Vricella, says lucky to have a young diagnosis.
The aortic fragment was another issue. He would definitely need more surgeries down the road.
As 2018 ends, McCarthys came home.
Baban Jack had made great efforts since his surgery, his mother said.
He gained pressure, a common fight for patients with cardiac problems.
He was smiling and eager to interact with parents.
Dr. took Stephen Manu, a pediatric cardiologist at the Akron Children's Hospital over the care of the baby.
Manu, Tracy McCarthy, has been a promoter for Jack from the start. He asked colleagues who are ready to act.
"He was going to continue fighting for him," he said.
A recent scan showed that Jack's new aorta works correctly. The doctors reported the expanded fall aorta and the extracts discovered by Vricella during the surgery.
The McCarthys were eager to let themselves dream of Jack's future. They've seen lead a normal life, go to school, play and have fun. They are all about him, laughing with him, hoping all their hearts as they move on.
Dr. Vricella said anything was possible, "But I said to his parents, we'll take one day at a time."
Tommy McCarthy said Jack liked any newborn. Although he used a feeding tube, he denied when he was hungry, he needed to change or want it.
Tracy McCarthy's death over her "happy, humble baby with a fun personality."
Over the weekend, the grandparents of the father of a father spent their grandson.
The following day her grandparents visited.
Grandpa Jack was still famous when I realized something was wrong.
Baby Jack looked at him and looked down (the baby) and knew he was having trouble, "said Tracy McCarthy on Tuesday.
He called to his daughter, who was in the shower. Jack did not breathe.
Tommy McCarthy started CPR. They call 911. The paramedics arrived and the baby rushed into hospital, throughout the life-saving measures.
It was too much. Heart Jack had put the best to beat.
He died January 27.
"There's a lot of faith and learning to deal with the space we feel on the ground," said Tracy McCarthy. "But he's not always interested. We'll see us in heaven. He's happy and he'll be healed and we'll see it again. That's our drive forward and what's going to go through it. "