The policy of hardship that the government of Andrés Manuel López Obrador is trying to implement has created uncertainty in patients with multiple sclerosis due to budget cuts that could put their treatment at risk.
"We don't know what is going to happen, this is a very expensive disease and we at least 1,500 patients are preferred by Popular Seguro, but now with the cuts in the budget we look, "Luz Luz María told Efe Thursday. Ramírez, a patient with this condition.
According to Dr. Verónica Rivas, the clinic's disease coordinator who disaggregates the National Institute of Neurology and Neurosurgery (INNN), the budget they received last year in this organism for patients with this disease was 15 million pesos (about $ 790,305). ).
However, the expert says they don't know how much he will raise this year, but the concern is great as some patients use medicines ranging from 50,000 to 220,000 pesos. (2,634 to 11,591 dollars).
"There is no official figure of how much will be allocated to the patient program, in the Institute we have more than 300 patients have benefited, but it is estimated that the population is more than 1,500 patients, the part has no t most any kind of social security, "he said. Rivas.
Multiple sclerosis is a degenerative disease of the central nervous system of autoimmune character and slow evolution, causing neurons to lose communication between them and originate disability.
This disease produces symptoms such as fatigue, imbalance, pain, visual and cognitive changes, speech difficulties, tremor.
The problem, says the expert, is that this is commonly called as a disease of a thousand faces or invisible, since the symptoms can be very different leading to confusion with other diseases or not. have no obvious symptoms.
That's why, according to Luz María Ramírez, patients can take several years to make the diagnosis, this has gone through several doctors of different specialties.
Multiple sclerosis is seen as a chronic and incurable disease affecting more than 2.3 million people in the world and around 15,000 people in Mexico.
Until a few years ago, the treatment for this disease was limited to a few medicines, but during the last decade a wide range of medicines were developed that offer a range of possibilities for treating the disease.
However, according to Dr. Brenda Bertado, coordinator of the decomposition disease clinic at XXI Rocking Hospital, the most important thing is the rehabilitation of patients as it helps them to delay the development of the disease.
"In addition, now the treatments are more personal, however, we must consider that multidisciplinary therapy must be given to manage patient cases and give them a better quality of life," he said.
To raise awareness in society about this disease, the pharmaceutical chemical company Merck House of Multiple Sclerosis opened on Wednesday.
This is a sensory, where the audience can experience for a few minutes how people who suffer from this disease live.
This space will be open free of charge to the public between Thursday and next Sunday at the Passage Forest Passage, in the heart of Mexico City.